Sew Many Joys

A Life of Family…Crafts…Joy…and LOVE

Home…there is nothing like it

Well, the last few days have been a blur of one long day!

It started late Wednesday night and continued until yesterday. And to be rather honest, today doesn’t feel all that ‘normal’ either. It sure has been a bumpy ride.

My little boy went into surgery-a planned surgery- but still so very stressful. The surgery itself went well, according to the surgeon-we’ll find out really what happened in a few weeks as dressings and such come off. But the recovery days at the hospital were a living nightmare.

My most darling husband stayed with him, while I went back and forth with our other son (who was not permitted on the floor because of flu/rsv season). So, it was quite a great juggling act. But my little darling didn’t understand why he needed to lay down and wanted ‘up’ and ‘out’ and ‘bye bye’ and all that he could muster up. Having given him the exhaustive list of medications, he still was not phased nor relaxing! I will give him this benefit, moving a kiddo’s room at 3a.m. isn’t relaxing either–so the fault for lack of sleep that night goes to the Hospital! But they gave Daddy a free meal voucher for it–how kind…your kid was up all night so you can go eat! I don’t think they are the same! 🙂

But anyway-after fighting to not pick him up because it was strict doctors orders, they were left with no options in the middle of the night on the second last day there. They had to and as soon as Joel did, he was laying still/flat and out like a light. Since I had told that he would lay still and flat and all that for us in our arms about two days earlier, it was almost a big ‘told you so’. I know the doctor had his reasons, but he is 1. You can’t rationalize with a 1 3/4 year old kid!!!! He doesn’t care that it’ll make it easier in the end, it bothers him NOW. He managed to pull out the IV in his foot–that was so lovely taped and blocked-he still got it out. (And all without hands!) It was a lesson in survival for us all because my husband wasn’t sleeping there and I wasn’t here because I was receiving the updates!

The good news at the end of this -is that he did get home yesterday morning. (In Johns Hopkins record discharge time, ever!) And we have been trying to adjust to life here. He is fragile but wants to do everything he did before and the most important thing is that he actually does want to sleep–so that has been a good thing for him!

My blogging-and all other fun activities, had been pushed aside and may need a few more days before I can think about some of the started drafts. I look forward to sharing more soon! 🙂

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4 responses to “Home…there is nothing like it

  1. Colleen February 28, 2011 at 15:17

    Niki and Joel… I am so glad your family is all back together . Rest lost ( all of you) Keep me posted and if you need anything I will do my best to help you out in anyway I can.
    We love you tons! hug and kiss the boys for us!
    you are Super Mom and Super Dad, I have pictures to prove it!!

    Love you all
    Colleen John and McKayla

  2. Chris February 28, 2011 at 20:31

    Niki and Joel,
    We have been watching your posts and keeping you in constant prayer. We hope that you find comfort in knowing that so many friends are holding all of you in thought and in prayer. Praying for your little guy’s healthy recovery and rejoicing with you that you are all back home together. We really love the pictures you have shared of the boys. They are growing fast. We think of you often and miss you. Blessings, Chris and Jace

    • NMC March 2, 2011 at 10:24

      Thank you Chris. It has been such a journey and we sure appreciate the prayers from all our friends!! We hope you are doing well – we miss you all.

  3. Charlotte Griffith March 2, 2011 at 13:56

    Thanks for sharing! I just read both this summary and the later one of treasuring the joys of being back home again. You allow me to almost experience it all with you. Know I love you all and am so glad this situation was something you could get through, and the other is life’s usual reality!
    Aunt Charlotte

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